living gluten free in the ATL

My name is Christy and I have Celiac Disease. Please take a few minutes to read MY STORY. My hope is that it will touch you somehow. Maybe you have a similar story. Maybe you have a family member that you are trying to understand a little better. Or maybe you just need a good read. Whatever the case may be I hope that you will keep coming back and share in my experiences as a wife, a mother, a photographer and as someone living gluten free in the ATL.

8 comments on “living gluten free in the ATL

  1. Dianne Brown on said:

    What a heart breaking story. A gynecologist is a doctor who specializes in women’s reproductive health issues. They screen for reproductive cancers, sexually transmitted diseases and screen your health history. Why wouldn’t they screen for Celiac’s if it can endanger the unborn child? You are absolutely right that every woman even considering having a baby should be tested for this disease. Woman’s health organizations should listen up. I’m sorry that you had to go through so much before someone finally listened.
    I think your new web site looks great. It’s informative and encouraging. You’re a strong person and I’m sure many people will benefit from your knowledge on the subject. I felt like I got to know you.
    Thanks Christy, best to you and your family, Dianne Brown

  2. theseeyes on said:

    Thank You Dianne for taking the time to read it. I hope it reaches someone else that might be struggling and maybe I can save them a few years of searching. We miss you guys!

    • Dianne Brown on said:

      Hello beautiful girl. I met a lovely girl at my theaphy session today. She also has celiac’s. She was excited to hear about your blog and to get the web site address (she put it in her phone). I hope she will be contacting you soon. She is facing alot of the same issues as you and so many others. I hope you both enjoy the company and can learn from each other. Love you guys.

      • theseeyes on said:

        Yeah!! Definitely send her my way. Like I said, if I can reach one person then it’s all worth it. Can’t wait to hear from her.

  3. Sheryl on said:

    I read your story and was surprised how long it took these doctors. Three weeks after our daughter turned three we found out she had celiac disease. We didn’t know what it was before she was diagnosed. She would throw up and have diarrhea and we called her doctor and he said it was probably a stomach bug. She had an appointment with the doctor around a week later and he said if she isn’t better by then we will run some tests. Well, a week later she wasn’t better. The doctor said he wanted to test her blood to see if she had celiac. She did. I felt and still feel bad for her. It didn’t take long for us to have her diagnosed though. Thank goodness. I wish all the time I had it and not her. Now she is eight and doing good.

    • theseeyes on said:

      Sheryl,
      I couldn’t believe how long it took either. But I can’t tell you how many times I’ve heard the same story. People taking years to get diagnosed. Doctors unfortunately are not always properly educated on what to look for in Celiac Disease. My symptoms included severe constipation, mood, anxiety, fatigue, etc. etc. So they all kept attributing it to my thyroid or the fact that I’m a female. I think they sometimes only look for diarrhea and vomiting. I’m so sorry that your daughter has it. I feel your pain about wanting to have it yourself instead. We are in the process of trying to figure out if my 8 year old has it as well. Getting a child diagnosed is often even harder. And the whole time they are suffering and only living half a life. I’m glad she is doing well though. Keep checking back because I’m hoping to also share some kid friendly recipes. We are going completely GF at home and I have a very picky eater. We just made GF granola bars the other day and my son and hubby absolutely devoured them. I am trying to make things that will not make them miss the real thing. Let me know if there is ever anything I can do to help and thanks for stopping by ;)

  4. Kristin on said:

    I just read your story and it sadly seems like so many others out there that take years and years to get a diagnosis. It only took my doctors (albeit, bad ones) 5 months to diagnose mine (although, my GI was sure I didn’t have Celiac and I had to really press him to test me anyway!!) ……but, even that felt like forever – but I know so many more people where it took years to finally find the cause. (They also found my hypothyroid issue after the Celiac diagnosis!) However, I have to say – I have also experienced the infertility as well as the miscarriage that you described. Sad part for me is that I have been going through that while being diagnosed and gluten-free for many, many years. I am faithful on my gluten-free diet, yet this still happened to me. I guess I just don’t want you to beat yourself up with the “what if” you had known about the Celiac beforehand – because it happened to me anyway. I don’t wish that on anyone. My miscarriage was 1.5 years ago and I have been unable to conceive again since then and I do not have any children. I may not be able to have any children and that breaks my heart. So, cherish the two little ones that you now have….. and I’m happy you have finally found your diagnosis and have something you can focus on to make your life happy and healthy for your entire family. Thank you for sharing your story.

    • truly madly freely on said:

      Hi Kristin,
      Thank you so much for taking the time to comment. It means so much to me that I am reaching other people that are going through the same thing. I am soooo sorry for your miscarriage and infertility issues. I do know how horrible it is. I am very, very blessed for my 2 babies and thank God for them every day. They are miracles to me. It is so easy to give advice and say “try this” or “maybe it’s this”. But when you are going through it, absolutely nothing helps. I will say that I got pregnant this last time after my doctor switched me over to Armour thyroid. I am convinced that also had something to do with it because it made such a huge impact on my symptoms. Just google “Armour vs. Synthroid” and you will read story after story of women in the same boat. And many were able to conceive after switching over.
      It is beyond horrible how long it takes most people to get diagnosed. And how little doctors actually seem to know about this disease. It took years of searching but I have finally found a handful that do know what they are talking about and take an active role in helping me to feel better. I am a huge believer in being your own advocate and switching doctors until you find the right one. I am lucky that I am stubborn and never stopped looking for answers. It scares me to think of the million of people that are needlessly suffering because they haven’t been diagnosed properly.
      Keeping you in my prayers…

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